Sharing your journey

Sharing your journey

TMA Annual Patient Conference 2015

Emily Filmore and Jerry Williams, Board members of MSU, along with Dr. Pat Vitacco, lead a session titled “Sharing your journey” at the 2015 Myositis Association Annual Patient Conference.

This interactive session was about the presenter’s experiences with writing, journaling, managing Facebook pages and websites, to find peace and to help others. It was a great session with much participation. We would love to hear your feedback!

Journaling and writing is beneficial on many levels with chronic illness Click to Tweet

With to share your journey to be posted on our website and social networks?

We look reading your stories, and sharing them, too! We learn from others experiences and this is your opportunity to help your fellow Myositis Champions by sharing your journey.

Simply visit our Share your Story page to submit yours!

Profile photo of Jerry Williams


Jerry Williams, the Founder and President of MSU, was diagnosed with Polymyositis in 2003 at the age of 27. Since his diagnosis, Jerry has made it his mission to help others living with the rare disease, Myositis. To this effort, Jerry is involved in many different aspects such as education, writing, helping support and answer questions from patients and caregivers, social networking and website development, and much more.

View more information: Jerry Williams

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Get your Zebra Shirts & Hoodies Today!

Campaign for Myositis Awareness Month, May 2017

Purchasing a shirt from this booster will help us, Myositis Support and Understanding, with our many patient support programs, education, financial assistance for patients and upcoming programs.

This year, 2017, Myositis Support and Understanding’s awareness month theme is “Sometimes Zebras have spots!” We want to raise awareness about how the experiences, symptoms, and complications of this rare disease are different, even among the patients with the same disease. Doctors are now trained, when you hear hoof beats, look for zebras (rarities), instead of horses (common ailments); when in the past, they only looked for the most common ailments.


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Hi, this may be interesting to you: Sharing your journey! The link is included below: --- Myositis Support and Understanding is a 501(c)3 nonprofit organization.