Myositis and its subtypes of Polymyositis, Dermatomyositis, Inclusion Body Myositis, and the Juvenile forms of Dermatomyositis and Polymyositis, are debilitating diseases that requires patients to make adjustments in their lives. These are what we call Myositis Hacks, or life hacks to make living with the rare disease, Myositis, a bit easier.
, , Hacks, Myositis
One of the worst things someone with chronic illness can do is make a mistake in the balance between...
Erasing or embracing your life? If you could give up your disease, would you? The answer seems obvious doesn’t...
by Emily A. Filmore How many times have you found that you were viewing yourself as, predominantly, a person...
Hack your Myositis with easy life hacks, simple changes to your life to make it easier
Social networking is an effective and fun way to promote Myositis awareness, however, many do not understand how to...
Inclusion Body Myositis Functional Rating Scale (IBMFRS) January 14, 2019
Inclusion Body Myositis Specialty Clinic at Washington University, St. Louis January 10, 2019
The first step when approaching a patient with muscle weakness – Differential diagnosis of idiopathic inflammatory myopathies in adults January 9, 2019
MSU works to improve the lives and empower those fighting Myositis through education, support, awareness, advocacy, and access to research. We are the leading nonprofit for myositis support for patients and caregivers.
As an organization in the rare community, we recognize that by collaborating with others we can do more than acting alone. We have committed to THRIVE to empower others in the rare community. Join us at thriveforrare.org
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