, , Featured, News
RDMD Partner Spotlight, Myositis Support and Understanding Association (MSU), patient-led, nonprofit organization for myositis patients and caregivers.
For Myositis Awareness Month, May 2019, we went back to our roots with a theme and focus on #MyositisLIFE...
Second Annual “A Day of Remembrance” a video event to honor and remember those we have lost with myositis....
In observance of Myositis Awareness Month during the month of May, MSU has launched a new patient and caregiver...
May is Myositis Awareness Month and we want to introduce our brand new website where your experiences get the...
Alyssa Smith wrote and sings a new song, "Save Me" and it will premiere on Feb. 28th, Rare Disease...
During Myositis Awareness Month, May 2018, we placed a large focus on patient education by hosting some of the...
Corbus Pharmaceuticals will host Jerry Williams, the Founder and President of MSU, Heather Spadaccini, Jerry’s friend and part-time caregiver,...
MSU, in participation with Corbus Pharmaceuticals, Idera Pharmaceuticals, and Diplomat Specialty Infusion Group, as a part of Myositis Awareness...
Explaining myositis (Idiopathic Inflammatory Myopathy) and how it affects our lives is difficult. There isn’t a simple, clear-cut answer...
PR: Myositis Support and Understanding Association, an all-volunteer, patient-centered 501(c)(3) nonprofit organization, commemorates National Myositis Awareness month with the...
Founder and President of MSU, Jerry Williams, shares details about MSU's plans for Myositis Awareness month, May 2018. Myositis...
What I find myself thinking about now, for the first time, in any detail, is who I was at...
, , Featured, Personal Stories
May is both Myositis and Mental Health Awareness Month and Jerry Williams, Founder and President of MSU shares the...
May is Myositis Awareness Month. Myositis Support and Understanding commemorates the month with patient-centered events. Our theme, "With Myositis,...
Myositis Awareness Month 2016: A success story: YOU and MSU together reached over 187,000 people during Myositis Awareness Month...
, , #MyositisLIFE, MyositisLIFE Story
In March 2012, after several days of low-grade temperatures and muscle aches, I noticed heaviness in my legs, like...
Lekiha shares her poem, "Picture This, Myositis Will Not Win" for Myositis Awareness Month and MSU's #MyositisLIFE project.
Just a little collage to raise awareness of #polymyositis
Standards of Care for Home Infusion Webinar Hosted by: IV Solutions Rx April 29, 2025
Managing Your Expectations with Movement & Exercise with Kourage Health March 3, 2025
Catch the Replay: “Your Health, Your Voice: Building a Lifesaving Medical Binder” with the Three Myositis Musketeers! January 23, 2025
Earn donations to Myositis Support and Understanding Association at no added cost to you by using goodshop.
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Standards of Care for Home Infusion Webinar Hosted by: IV Solutions Rx April 29, 2025
Managing Your Expectations with Movement & Exercise with Kourage Health March 3, 2025
Catch the Replay: “Your Health, Your Voice: Building a Lifesaving Medical Binder” with the Three Myositis Musketeers! January 23, 2025
