Vicki shares her relaxation space, her relaxing #MyositisLIFE, for #MyositisAwareness Month and MSU’s #MyositisLIFE project. (Five images included. Hover over the image above to view more)

I was diagnosed with Polymyositis in September of 2012. Before getting sick, I was always so busy working, running kids where they needed to go, cooking, cleaning, etc…. There were times I wished life would slow down so I could enjoy all the things life has to offer. You blink and kids are grown up, parents have passed, flowers have bloomed and then, all of a sudden it’s winter and the ground is covered with white blanket of snow.

Polymyositis has given me the chance to slow down and enjoy all of those things that zipped by so quickly. I get to spend quality time with my family and friends, walk on the beach with my husband, listen to my boys laughter and sit on my back porch watching the pretty flowers bloom in my garden. I can watch the sunset and take amazing pictures of rainbows, which my Mom viewed as “Hope and Good Luck” before she passed from cancer. I have found fun hobbies to keep me busy and have met some wonderful people who also share this disease.

Myositis may have taken a lot away from me, but the things I have gained and learned are far greater. I see clearly what is important in life and not to take those little moments for granted, as they are what get me through bad days.



Myositis Support and Understanding Association (MSU) is a patient-centered, all-volunteer 501(c)(3) nonprofit organization Empowering the Myositis Community. Founded by Myositis patients, for Myositis patients, MSU provides education, support, advocacy, access to research and clinical trial matching, and need-based financial assistance.

View more information: Myositis Support


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