“Be” A Poem For today’s Caregiver Monday, we want to share with you a poem by a patient with...
Myositis News and Updates
Jerry Williams, Founder and President of Myositis Support and Understanding, and his partner Charlie take the ALS Ice bucket...
Respite care offers myositis caregivers a temporary rest while your loved one receives care through other means. In-home respite...
We have all done it; gone to the web and Googled “Myositis.” We get pages of search results; however,...
According to a study by Yale University, one-third of caregivers are clinically depressed. You, as a caregiver, are at...
Many doctors who specialize in myositis suggest an initial dosage of prednisone which is based upon your weight in...
Are you a caregiver for a myositis patient? You are not alone. Caregiver support groups provide a safe place...
Kilograms (kg) are now and have been, the unit of measurement used in the US for determining our weight...
Caregivers and Loved Ones, Time to Play! Play theorist Brian Sutton-Smith shares his observation: “The opposite of play is...
Experience-based tips from patients taking IVIG for myositis on how they avoid or at least minimize a headache
Financial Aspects of Caregiving When you are a full time caregiver to a spouse or partner who is on...
Opioid-induced constipation can be absolutely miserable. The pain it causes, the bloating, as well as a general “unwell’ feeling,...
Communication can be one of the hardest things between a caregiver and patient and may lead to arguments, hurt...
Myositis can cause the throat muscles, and all muscles involved in swallowing, to weaken, thus making meal times difficult...
Watch the presentation and learn more about defining what “family” is in caregiving and some wonderful insights about caregiving...
“The Caregiver Community Action Network (CCAN) is a unique and highly dedicated group of over 100 volunteers in more...
Juvenile Myositis (JM or JDM for Juvenile Dermatomyositis) is a rare autoimmune disease that affects about 5,000 children in...
As a caregiver for someone with myositis, you have one of the hardest, most stressful jobs imaginable. Caring for...
Benefits of free membership to the Muscular Dystrophy Association include subscription to Quest Magazine, patient & caregiver support, equipment...
Myositis, a muscle disease, falls under the Muscular Dystrophy Association. Myo = muscle, itis = inflammation. MDA clinics are...