Explaining myositis (Idiopathic Inflammatory Myopathy) and how it affects our lives is difficult. There isn’t a simple, clear-cut answer...
Myositis News and Updates
Explaining myositis (Idiopathic Inflammatory Myopathy) and how it affects our lives is difficult. There isn’t a simple, clear-cut answer...
MSU is attending the 2022 Global Conference on Myositis in Prague and will be represented in two (2) scientific...
Kezar Announces Topline Results from the PRESIDIO Trial of Zetomipzomib for the Treatment of Dermatomyositis and Polymyositis
Help researchers and clinicians better understand how patients with myositis and other autoimmune conditions feel about COVID-19/the novel coronavirus.
Financial Assistance Available for the Myositis Patient Community Impacted by COVID-19

Myositis Support and Understanding Association Commits to Providing at least $60K in Financial Assistance for Myositis Patients Impacted by...
Watch to learn about different types of orthotics and braces that may be helpful for people with myositis. We...
Many types of myositis (inflammatory myopathy) disproportionately affect women and women of color and there is much work to...
Watch "Surviving the Holidays with Myositis" a webinar on #MyositisLIFE. Learn tips to get through the holidays living with...
Second Annual “A Day of Remembrance” a video event to honor and remember those we have lost with myositis....
May is Myositis Awareness Month and we want to introduce our brand new website where your experiences get the...
Watch the AllStripes, formerly RDMD, video session we did in 2020 to learn more about the Inclusion Body Myositis...
An Update on the Clinical Studies Using Arimoclomol as a Potential Treatment for sIBM

Watch "An Update on the Clinical Studies Using Arimoclomol as a Potential Treatment for sIBM" with Dr. Mazen Dimachkie,...
The information collected by ultrasound elastography (USE), such as structural changes of muscle, is thought to make it useful for...
Amazon's donate feature is a part of the various tools and programs MSU uses to make donating fast and easy....
Lenabasum for dermatomyositis receives orphan designation in the European Union

Today, Corbus Pharmaceuticals announced that the European Commission has approved orphan designation for lenabasum in the treatment of dermatomyositis...
New Study for Patients with Inclusion Body Myositis (IBM) at Yale

We would like to let you know about a clinical research study that is available for patients diagnosed with...
PR: Myositis Support and Understanding Association Elects Four New Board Members

Joining the association are Jim Doiron from Leesburg, VA; Lynn Wilson, from Taylor Lake Village, TX; Caitlin Ray from...
MSU’s guest author, Dr. Daniel Chellete, analyzed recent studies concerning exercise with Myositis. Dr. Chellete is a doctor of...
"New Developments on the Role of Itch in Dermatomyositis", based on new research published in the British Journal of...
Myositis patients have special needs when preparing for natural disasters. Learn more and be prepared with a plan
New Insights on sporadic Inclusion body myositis (sIBM) pathogenesis

Dr. Conrad "Chris" Weihl joins MSU live for a session titled "New Insights on sporadic Inclusion body myositis (sIBM)...