Myositis Articles and Personal Stories

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Campaign for Myositis Awareness Month, May 2017

Purchasing a shirt from this booster will help us, Myositis Support and Understanding, with our many patient support programs, education, financial assistance for patients and upcoming programs.

This year, 2017, Myositis Support and Understanding’s awareness month theme is “Sometimes Zebras have spots!” We want to raise awareness about how the experiences, symptoms, and complications of this rare disease are different, even among the patients with the same disease. Doctors are now trained, when you hear hoof beats, look for zebras (rarities), instead of horses (common ailments); when in the past, they only looked for the most common ailments.

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Hi, this may be interesting to you: Rare Disease Week on Capitol Hill, a recap! The link is included below: https://understandingmyositis.org/rare-disease-week-on-capitol-hill-a-recap/ --- Myositis Support and Understanding is a 501(c)3 nonprofit organization.