Watch the video, "Experience of pain and fatigue in adult idiopathic inflammatory myopathies (IIM)" with Helene Alexanderson, Ph.D. with...
Featured news, clinical trials, MSU updates and more.
In this video, Patrick Schmidt of FFF Enterprises and Michelle Vogel of CSI Pharmacy join MSU to explain the...
Myositis Support and Understanding (MSU) partners with the University of Pittsburgh for a new NIH-sponsored study entitled, “Myositis Patient...
Michelle Vogel of CSI Pharmacy, a sponsor of MSU and MyositisLIFE.org, provides information about the national Ig shortage. These...
Announcing the Mary Jane DeLauder Memorial Fund for inclusion body myositis
Myositis Support, , Featured, Inclusion Body Myositis (IBM), News, PressMary Jane's passion for welcoming and educating was well-known throughout the myositis community. That’s why we can think of...
Skin findings seen with myositis autoantibodies and treatment of skin in dermatomyositis
Myositis Support, , Dermatomyositis, Featured, News, VideoDr. Victoria Werth joined us live online for a video education session titled, "Skin findings seen with myositis autoantibodies...
Plasma Services Group (PSG) joined us for a live video discussion about donating plasma for medical research. You could...
CSI Pharmacy joined us for a live video education session about IG therapy, both IVIG and SCIG. Health insurance...
A session that covered safety and effects of exercise in recent onset and established adult and juvenile IIM. Dr....
In observance of Myositis Awareness Month during the month of May, MSU has launched a new patient and caregiver...
Join the Yale Inclusion Body Myositis Registry
Myositis Support, , Featured, Inclusion Body Myositis (IBM)The success of the Registry effort depends on the cooperative efforts of IBM patients around the world. The IBM...
An Update on the Clinical Studies Using Arimoclomol as a Potential Treatment for Sporadic Inclusion Body Myositis Video
Myositis Support, , Featured, Inclusion Body Myositis (IBM)The ongoing Arimoclomol Clinical Trial for sIBM continues to generate a lot of questions from our community. As part...
The Performance of the EULAR/ACR IIM classification criteria in an expert-defined 10 year incident cohort
Myositis Support, , Featured, MyositisThis paper assesses the performance of EULAR/ACR classification criteria in a cohort of IIM cases and examines how subtypes...
Learn about how clinical trials work in this educational and interactive video session led by Lindsey Wahlstrom-Edwards, Head of...
Alyssa Smith wrote and sings a new song, "Save Me" and it will premiere on Feb. 28th, Rare Disease...
Identification of Predictors for Interstitial Lung Disease in Myositis Patients: A Systematic Review
Myositis Support, , Featured, Myositis, NewsInterstitial lung disease (ILD) is a well-recognized complication in the spectrum of diseases known as the idiopathic inflammatory myopathies...
Introducing the NEW Myositis Support Community! The Myositis Support Community is similar to Facebook, however, it provides a more...
RDMD and MSU Collaborating for IBM Research
Myositis Support, , Featured, Inclusion Body Myositis (IBM), NewsWe are excited to announce a new collaboration with RDMD, a company that aims to jumpstart research for patients...
Join MSU in celebrating Rare Disease Day, Feb. 28th, and Rare Disease Week on Capitol Hill. We are also...