Myositis Awareness
Understanding Dysphagia with Suzanne Belmonte, patient and SLP
MSU Zoom Video Session Video session using ZoomRegister to join us on Zoom for Understanding Dysphagia with Suzanne Belmonte, a myositis patient, and speech-language pathologist, on Thursday, May 6, 2021, starting at 7 PM Eastern Time.
Communicating with your doctor as a Myositis patient
MSU Zoom Video Session Video session using ZoomIn our first webinar, we will talk more about how the patient /doctor relationship is changing in myositis. What should you expect? How do you make your voice heard? Dr. Bhai welcomes your questions.
Living with Myositis, An Awareness Month Discussion hosted by This is RARE.
ClubhouseThis is RARE. is hosting Jerry Williams, founder and president of MSU on Clubhouse for "Living with Myositis, An Awareness Month Discussion." Join us on Clubhouse May 14th at 7 PM ET to listen in, and to be a part of the discussion.
Myositis and COVID
MSU Zoom Video Session Video session using ZoomMamatha Pasnoor, MD, is joining us to discuss Myositis and COVID including inflammation of muscles with COVID infection, vaccination with immunosuppressive therapies, and COVID infection in myositis patients.
Hands-on PT for Myositis Patients
MSU Zoom Video Session Video session using ZoomDavid Overby, a Physical Therapist with his own practice, is joining us to talk about Hands-On Physical Therapy for myositis patients, such as myofascial release. This is an exciting and unique session and we hope you will join us.
Myositis Do-It-Yourself Accessibility Adaptations with Larry M.
MSU Zoom Video Session Video session using ZoomMyositis group member, Larry shows us how he “Inspector Gadgets” his way through myositis. If you are interested in how he “MacGyver's” adaptations for things such as easier-to-use pens for hand weakness with fishing bobbers you are in for a treat! Join us!
Live with the Landman’s: Honoring the life of Stella Clapp
MSU Live YouTube MSU YouTube PageTo kick-off Spirit Week, join us LIVE on YouTube for an intimate discussion honoring the life of Stella Clapp with Stella's daughter, Jennifer Schubert.
3rd Annual Myositis Empower Walk
MSU Live YouTube MSU YouTube PageJoin us for the 3rd Annual Myositis Empower Walk either in person at Discovery Park in Henderson, NV, or via live stream, on Saturday, October 2, 2021. Don't miss the activities leading up to, and on the day of the walk!
Clinical Study in Dermatomyositis
MSU Zoom Video Session Video session using ZoomJoin MSU with Sanjay Rakhade MD, PhD, Executive Medical Director at Alexion Astra Zeneca Rare Disease Unit to learn about the Flex Study, a study to evaluate the safety and efficacy of an investigational medication on reducing symptoms of adults with Dermatomyositis.
Immune Globulin Therapy: All your questions answered
MSU Zoom Video Session Video session using ZoomJoin MSU for a webinar with CSI Pharmacy, Immune Globulin Therapy: All your questions answered. This is your opportunity to ask the experts, including patient experts, the questions you have about the therapy such as side effects, brand differences, IV vs SubQ, site of care, insurance, out-of-pocket costs, copay assistance programs and more.
The Power of Our Voice: FDA Listening Session for Adult Dermatomyositis
ZOOM Webinar 9125 N Old State Rd, Lincoln, DE, United StatesThe power of our voice can impact the direction of research and clinical trials. Join us for a virtual Fireside Chat on the lessons learned from our FDA Listening Session for Adult Dermatomyositis.
Simple steps to focus on your emotional wellbeing with Lori Wong
MSU Zoom Video Session Video session using ZoomJoin us for a free interactive workshop with Lori Wong, a person living with inclusion body myositis and retired Stanford-certified Compassion Cultivation Training (CCT) teacher to explore evidence-based steps to support your mental well-being, which are just as important as the steps you take to care for your physical body.
The Power of Our Voice: MSU Pain Study
MSU Zoom Video Session Video session using ZoomJoin for a retrospective look at how a community call to action led to a seminal study on pain in Myositis and what it means for the community, with Drs Salman Bhai and Abhiram Bhashyam, co-authors of Pain profile and opioid medication use in myositis.
Aches and Pains in Myositis by Dr. Salman Bhai
MSU Zoom Video Session Video session using ZoomDr. Salman Bhai, MSU Medical Advisor, will join us for a webinar on Sat., May 6th, to help us understand how patients, doctors, & PT's need to work together to individualize therapy treatment, and he will answer your questions.