Watch the recording of this great webinar that includes excellent Q&A! Alvaro Silberstein, co-founder of "Wheel the World" joins...
Tag Archive for: rare disease day
A Closer Look: Clinical Trials and the PRESIDIO Study

Clinical trials are a key research tool for advancing medical knowledge and patient care. Join Kezar Life Sciences as...
For patients, caregivers, family and friends, watch Part 5 of our popular Exercise In Place series with the OT/PT...
Watch to learn about different types of orthotics and braces that may be helpful for people with myositis. We...
Alyssa Smith wrote and sings a new song, "Save Me" and it will premiere on Feb. 28th, Rare Disease...
Join MSU in celebrating Rare Disease Day, Feb. 28th, and Rare Disease Week on Capitol Hill. We are also...
Myositis Support and Understanding Association (MSU) has joined forces with 30 million Americans and health care advocates around the...
For the fourth year in a row, Myositis Support and Understanding Association, Inc. (MSU) is proud to join NORD...
Photos of Myositis patients, family members, and friends supporting MSU and Rare Disease Day, 2015
You are rare! Yes, you, living with Polymyositis, Dermatomyositis, Inclusion Body Myositis, and Juvenile Myositis. Our caregivers, you, too,...
Myositis Support and Understanding Joins Rare Disease Day® and the Global Movement to Raise Important Awareness for Rare Diseases...
Recently posted
-
Managing Your Expectations with Movement & Exercise with Kourage Health March 3, 2025
-
Meet Elisa Glass: MSU’s First Executive Director – Vision & Journey February 17, 2025
-
Catch the Replay: “Your Health, Your Voice: Building a Lifesaving Medical Binder” with the Three Myositis Musketeers! January 23, 2025