Corbus Pharmaceuticals will host Jerry Williams, the Founder and President of MSU, Heather Spadaccini, Jerry’s friend and part-time caregiver,...
Tag Archive for: myositis awareness
MSU, in participation with Corbus Pharmaceuticals, Idera Pharmaceuticals, and Diplomat Specialty Infusion Group, as a part of Myositis Awareness...
Explaining myositis (Idiopathic Inflammatory Myopathy) and how it affects our lives is difficult. There isn’t a simple, clear-cut answer...
PR: Myositis Support and Understanding Association, an all-volunteer, patient-centered 501(c)(3) nonprofit organization, commemorates National Myositis Awareness month with the...
Founder and President of MSU, Jerry Williams, shares details about MSU's plans for Myositis Awareness month, May 2018. Myositis...
What I find myself thinking about now, for the first time, in any detail, is who I was at...
Mental Health and Myositis Awareness Month’s meet, Jerry shares his story
Jerry Williams, , Featured, Personal StoriesMay is both Myositis and Mental Health Awareness Month and Jerry Williams, Founder and President of MSU shares the...
May is Myositis Awareness Month. Myositis Support and Understanding commemorates the month with patient-centered events. Our theme, "With Myositis,...
Myositis Awareness Month 2016: A success story: YOU and MSU together reached over 187,000 people during Myositis Awareness Month...
Adventures with Polymyositis: My experiences and what I’ve learned
Myositis Support, , #MyositisLIFE, MyositisLIFE StoryIn March 2012, after several days of low-grade temperatures and muscle aches, I noticed heaviness in my legs, like...
Lekiha shares her poem, "Picture This, Myositis Will Not Win" for Myositis Awareness Month and MSU's #MyositisLIFE project.
Just a little collage to raise awareness of #polymyositis
Dermatomyositis does not have to stop you from pursuing your dreams. My journey had many challenges but I can...
Yvette shares her #MyositisLIFE, “Imagine That!,” a glimpse into being perfectly healthy and then becoming disabled in the blink...
My journey started in 2013. I was in the best physical shape in a long time. I started each...
Sarah shares her Appreciate Every Day video for Myositis Awareness Month and MSU’s #MyositisLIFE project.
Dear Dermatomyositis, I am writing you because I found out in January 2015 you were the culprit behind my...
I have heard so many stories of how those diagnosed with a chronic illness, like Myositis, have lost their...
I have Inclusion Body Myositis (IBM); a rare and degenerative muscle wasting disease. It is an autoimmune disease with...
Charlie Jester shares his #MyositisLIFE as a spouse and caregiver
Myositis Support, , #MyositisLIFE, MyositisLIFE VideoAs Jerry’s partner of 13 years, and spouse of 3 years, I think I have witnessed just about everything...