Myositis Awareness Month 2016: A success story: YOU and MSU together reached over 187,000 people during Myositis Awareness Month...
Tag Archive for: myositis awareness
Adventures with Polymyositis: My experiences and what I’ve learned

In March 2012, after several days of low-grade temperatures and muscle aches, I noticed heaviness in my legs, like...
Lekiha shares her poem, "Picture This, Myositis Will Not Win" for Myositis Awareness Month and MSU's #MyositisLIFE project.
Just a little collage to raise awareness of #polymyositis
Dermatomyositis does not have to stop you from pursuing your dreams. My journey had many challenges but I can...
Yvette shares her #MyositisLIFE, “Imagine That!,” a glimpse into being perfectly healthy and then becoming disabled in the blink...
My journey started in 2013. I was in the best physical shape in a long time. I started each...
Sarah shares her Appreciate Every Day video for Myositis Awareness Month and MSU’s #MyositisLIFE project.
Dear Dermatomyositis, I am writing you because I found out in January 2015 you were the culprit behind my...
I have heard so many stories of how those diagnosed with a chronic illness, like Myositis, have lost their...
I have Inclusion Body Myositis (IBM); a rare and degenerative muscle wasting disease. It is an autoimmune disease with...
Charlie Jester shares his #MyositisLIFE as a spouse and caregiver

As Jerry’s partner of 13 years, and spouse of 3 years, I think I have witnessed just about everything...
There are many challenges faced by patients living with a rare, chronic illness like Myositis. These can include: medication...
Diagnosed with Dermatomyositis in 2012, I was looking for an easy (and interesting) way to share my story with...
Jerry Williams shares his #MyositisLIFE living with Polymyositis and overlap syndromes

MSU Founder and President, Jerry Williams, shares his #MyositisLIFE. He shares his commitment to helping other Myositis patients...
I was diagnosed with Polymyositis in September of 2012. Before getting sick, I was always so busy working, running...
I am the their care giver you see me every where But what you don't see is just how I...
I have polymyositis , having been diagnosed 24 years ago. The diagnosis was confirmed after six months of testing. I...
I have been working on my cross stitch project for several months. Here is the first half.
I have Inclusion Body Myositis (IBM); a rare and degenerative muscle disease. It is an autoimmune disease with symptoms...