Dermatomyositis (DM) and polymyositis (PM) are rare autoimmune inflammatory myopathies characterized by muscle weakness and multiple extra-muscular manifestations that...
AllStripes & MSU: You can accelerate drug development in Dermatomyositis!
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AllStripes was honored to host this webinar with the Myositis Support and Understanding Association to discuss our current and...
Cannabis and Autoimmune Disease. Nurse and Cannabis Health Coach, Christine Lee, BSN, PHN, RN joined MSU to share about...
Episode 2: Power of short duration exercise with Blood flow restriction (BFR)
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Episode 2: Managing Your Care series, Brett Burton, PT, DPT, SCS, ATC, CSCS, Founder of Somavive and Proactive Performance...
‘Oh The Places You’ll Go’: Traveling and Exploring with Confidence
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‘Oh The Places You’ll Go’: Traveling and Exploring with Confidence with Myositis, together with Megan and Lauren, Occupational Therapist’s...
Cheilonda Johnson, MD, MHS, joined the MSU family for a discussion about taking charge of your interstitial lung disease...
Myositis Do-It-Yourself Accessibility Adaptations with Larry M.
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Larry M. is living with inclusion body myositis (IBM) and he joined us to share adaptations he has made...
Hands On Physical Therapy for Myositis Patients
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David Overby, a Physical Therapist with his own practice, joins us to talk about Hands On Physical Therapy for...
Watch the recording. Mamatha Pasnoor, MD, joined us to discuss inflammation of muscles with COVID infection, vaccination with immunosuppressive...
Episode 1: Communicating with your doctor as a myositis patient
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Watch the recording of Episode 1 of our new webinar series, Managing Your Care Starts with You, together with...
Understanding Dysphagia with Suzanne Belmonte, patient and SLP
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Watch "Understanding Dysphagia" with Suzanne Belmonte, who is a myositis patient, and speech-language pathologist. Learn more about dysphagia from...
A Closer Look: Clinical Trials and the PRESIDIO Study
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Clinical trials are a key research tool for advancing medical knowledge and patient care. Join Kezar Life Sciences as...
For patients, caregivers, family and friends, watch Part 5 of our popular Exercise In Place series with the OT/PT...
Megan McGowen and Lauren Burgess, Occupational Therapy, and Fin Mears, Physical Therapy, with the Johns Hopkins Myositis Center discuss...
AllStripes provides an update on the inclusion body myositis (IBM) research program and the video includes a step-by-step walkthrough...
After Diagnosis: The Burden of Care and the Evolving Doctor/Patient Relationship
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Dr. Salman Bhai joins MSU to share best practices related to myositis care and empowers you to seek the...
Learn practical techniques on how to flip negativity and tame irrational thinking patterns, how to reframe our attitude about...
The Tiger at the Door: The Relationship between Trauma and Chronic Pain
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Learn what trauma is and isn’t, one theory of how it develops, and how it impacts the nervous system,...
Young adults living with rare diseases have many unmet needs and many life decisions that can be impacted by...