Watch "Polymyositis: The evolution of this diagnosis in light of recent research" with Dr. Christopher-Stine, who also discusses immune-mediated...
Myositis News and Updates
The NT5C1A Antibody Test and its Role in the Diagnosis of Inclusion Body Myositis
Myositis Support, , Inclusion Body Myositis (IBM), VideoLearn more about the NT5CIA antibody and its association with inclusion body myositis from Dr. Kevin Dooley, a retired...
PR: MSU, Portable Genomics teaming up to bring a tailored health data management platform to myositis patients
Myositis Support, , Myositis, PressPortable Genomics and Myositis Support and Understanding Association (MSU) have partnered to enable myositis patients to better collect, manage,...
Corbus Pharmaceuticals will host Jerry Williams, the Founder and President of MSU, Heather Spadaccini, Jerry’s friend and part-time caregiver,...
MSU, in participation with Corbus Pharmaceuticals, Idera Pharmaceuticals, and Diplomat Specialty Infusion Group, as a part of Myositis Awareness...
PR: Myositis Support and Understanding Association, an all-volunteer, patient-centered 501(c)(3) nonprofit organization, commemorates National Myositis Awareness month with the...
Founder and President of MSU, Jerry Williams, shares details about MSU's plans for Myositis Awareness month, May 2018. Myositis...
MSU, a patient-centered 501(c)(3) nonprofit organization, is proud to announce a partnership with Antidote Technologies, a digital health company...
Living with, and trying to overcome, autoimmune diseases affect all the people we love. Those of us who have...
We all face a tough battle living with rare, autoimmune diseases like myositis. Remember to Be Kind as we never know what one is dealing with on a particular day.
This article really struck at the heart of what many of us living with myositis face. We suggest reading and sharing this article.
“Be Kind”
By Rebecca Zook
“The rare disease-diagnosis road is not for the fainthearted. Anyone who has traveled it or lives with any kind of chronic illness is far stronger than you can imagine. We call ourselves zebra-warriors. In reality, we aren’t braver than anyone else; we are fighting because we have no choice. We are fighting an endless, unwinnable battle because the alternative is unthinkable. We have no cure and no end point. We walk side by side with our diagnoses and have to make peace with them.”
Read the full article at http://www.igliving.com/BlogEngine/post/be-kind.aspx
Dr. Victoria Werth, MD, presents, "Overview and new developments in Dermatomyositis." This was a live Myositis Support and Understanding...
Myositis Support and Understanding Association (MSU) has joined forces with 30 million Americans and health care advocates around the...
It has been a busy and productive year for MSU. We are sorry so many are still suffering from...
Orphazyme formally assumes the sponsorship of Phase II/III arimoclomol trial for sIBM
Myositis Support, , Inclusion Body Myositis (IBM), NewsOn December 14, 2017, Orphazyme A/S, University of Kansas Medical Center, and UCL announced that Orphazyme formally assumes the...
Learn more about the different types of Myositis Live Online Video Support, Education, and Activity Sessions we offer, how...
A touching personal story from the daugher of a myositis patient remembering that her Dad, her longtime hero, ...
PRESS RELEASE: Myositis Support and Understanding (MSU) is once again a participant in #GivingTuesday, a global day of giving....
FDA grants Orphazyme drug arimoclomol orphan drug designation in the U.S.
Myositis Support, , Inclusion Body Myositis (IBM), NewsOrphazyme A/S, a Danish biotech company with a late-stage orphan drug pipeline, today announced that the U.S. Food and...
What I find myself thinking about now, for the first time, in any detail, is who I was at...
Open Enrollment for the insurance marketplace for coverage starting 2018 begins on November 1st and ends December 15, 2017....