MSU is a 501(c)(3) non-profit organization founded on July 30, 2015, for patients living with, and for loved ones...
Myositis News and Updates
A wife, sister, soldier, student, and a daughter. Life was great. 22 years old and nothing seemed impossible. The...
Chronic Illness, Myositis, and Depression: The following are the comments I gave to a support group about my book,...
I truly have a passion and desire to prevent others from going through what I've gone through! I...
May is Myositis Awareness Month. Myositis Support and Understanding commemorates the month with patient-centered events. Our theme, "With Myositis,...
Learn more about Rose's experience on Capitol Hill during Rare Disease Week 2017. Find helpful links to Advocacy organizations...
As you probably know, we have lost many of our MSU group members throughout the past couple of years,...
Although everyday life seems like a mad dash to the finish line honestly it’s all about staying the course...
Investigators are seeking people with dermatomyositis to participate in a phase 2 clinical trial of the experimental drug IMO-8400....
11 Ways to Be Intimate When You Have Chronic Illness and Sex Is Difficult
Emily Filmore, , Healthcare TipsFebruary is the month of love. Chocolate-covered strawberries, roses, sensual massage oils, lingerie, and champagne — we see reminders...
A great article we found about Prednisone (steroid) withdrawal.
Prednisone Withdrawal: As a patient with #myositis, you are likely on, or have been on, prednisone at some point. Prednisone is a man-made substance that reduces inflammation quickly and that is why it is used as a first-line treatment in most forms of myositis. But what happens when it is time to taper? GO SLOW!
http://www.healthline.com/health/psoriasis/prednisone-withdrawal
“Depending on how long you’ve been taking prednisone, your withdrawal symptoms may last from a few weeks to up to 12 months. This time will likely be much shorter if you follow your doctor’s instructions for slowly tapering your dosage of prednisone when you stop taking it.”
Sadly, my mum lost her battle as an IBM warrior
Myositis Support, , Inclusion Body Myositis (IBM), Personal StoriesMums journey was a very difficult one. I remember her first fall the day I gave birth to...
We hope that your involvement with Myositis Support and Understanding (MSU) has allowed you to feel more included and...
A short story about Jerry Williams, president of MSU, and getting involved
Myositis Support, , News, PolymyositisIt has been over 13 years since Jerry Williams, president of MSU, was diagnosed with Polymyositis, sometimes simply referred...
I think we often neglect to hear what our children and younger family members think about us living with...
Myositis Support and Understanding is hosting a fundraiser and requesting volunteers for #GivingTuesday, a global giving movement that has...
As we continue our rapid growth, we are looking for volunteers and Board Members who are interested in donating...
When visiting a new doctor, patients are usually supplied with a number of information packets that are to be...
Learn more about Lynn Lizarraga and her online video laughter yoga program she provides to members of Myositis Support...
Sorry if my grammar is not good. I’m not fluent in English. I’m Akira 23 years old and lives...