Lincoln, DE – July 14, 2016 – Myositis Support and Understanding Association, Inc. (MSU) launches its long-awaited Myositis Patient Financial Assistance...
Myositis News and Updates
She Said, He Said - Part 1: Myositis muscle weakness. Part one of the series by Emily Filmore and...
"My daughter is my first priority, always. There are days when brushing my hair is hard, showering is a...
Myositis Awareness Month 2016: A success story: YOU and MSU together reached over 187,000 people during Myositis Awareness Month...
Adventures with Polymyositis: My experiences and what I’ve learned
Myositis Support, , #MyositisLIFE, MyositisLIFE StoryIn March 2012, after several days of low-grade temperatures and muscle aches, I noticed heaviness in my legs, like...
This was more like "A Month in the Life" since I filmed almost every day this month for Myositis...
Ellen Armour and I, our life with Polymyositis
Myositis Support, , #MyositisLIFE, MyositisLIFE StoryStan shares his thoughts on his wife, Ellen, and her on-going battle with polymyositis.
Lekiha shares her poem, "Picture This, Myositis Will Not Win" for Myositis Awareness Month and MSU's #MyositisLIFE project.
Just a little collage to raise awareness of #polymyositis
One of the reasons that Myositis fails to receive a lot of attention and respect is that it isn’t...
Dermatomyositis does not have to stop you from pursuing your dreams. My journey had many challenges but I can...
Yvette shares her #MyositisLIFE, “Imagine That!,” a glimpse into being perfectly healthy and then becoming disabled in the blink...
My journey started in 2013. I was in the best physical shape in a long time. I started each...
Sarah shares her Appreciate Every Day video for Myositis Awareness Month and MSU’s #MyositisLIFE project.
Dear Dermatomyositis, I am writing you because I found out in January 2015 you were the culprit behind my...
I have heard so many stories of how those diagnosed with a chronic illness, like Myositis, have lost their...
I have Inclusion Body Myositis (IBM); a rare and degenerative muscle wasting disease. It is an autoimmune disease with...
Charlie Jester shares his #MyositisLIFE as a spouse and caregiver
Myositis Support, , #MyositisLIFE, MyositisLIFE VideoAs Jerry’s partner of 13 years, and spouse of 3 years, I think I have witnessed just about everything...
There are many challenges faced by patients living with a rare, chronic illness like Myositis. These can include: medication...
Diagnosed with Dermatomyositis in 2012, I was looking for an easy (and interesting) way to share my story with...