Trusted resources and updates about the coronavirus (COVID-19) pandemic and myositis, including newly updated information and resources to help...
Featured news, clinical trials, MSU updates and more.
Watch for information to help guide your local physical and occupational therapy teams such as what should be included...
MSU supports our myositis community members who are Black and are other People of Color (POC)
, , Featured, News, Take Action
Until systemic oppression is addressed in policing, education, medicine, and in countless other places, we will never be able...
Learn about plasma donation and invite your family and friends to donate to help prevent a shortage of immunoglobulin...
Paul shares five important elements at the Heart of Caregiving from his own personal experience and story as a...
Managing Myositis Patient Care During the COVID-19 Public Health Crisis
, , Featured, Myositis, Video
Dr. Aggarwal answers patient-submitted questions about COVID-19 and myositis with topics including proper precautions to stay safe, information about...
Occupational therapists Megan McGowan and Lauren Burgess, and physical therapists Fin Mears and Ruben Pagkatipunan Jr., discuss and demonstrate...
Watch the webinar as we welcome Babette Reeves, MA, MSW, LCSW, Behavioral Medicine Specialist, and she shares tools for...
Partner Spotlight: How Myositis Support and Understanding Association adapts and stays nimble
Charlene Fernandez of RDMD put MSU in the spotlight for Myositis Awareness Month, May 2020. Read the article to learn about MSU and two of the board members who also manage daily operations, and who are also living with myositis themselves.
Read the full article at https://www.rdmd.com/blog/partner-spotlight-myositis-supportand-understanding-association
Learn more about the RDMD and MSU partnership.
Make your own fabric masks with this helpful information and some how-to videos for sew and no-sew fabric masks...
Learn more about using Zoom for MSU video support, activity and education sessions. Keeping software updated is important, as...
Dr. Lisa Christopher-Stine and Dr. Christopher Mecoli with Johns Hopkins Myositis Center joined MSU for a live Q&A webinar...
Clinical Trial of Arimoclomol in Inclusion Body Myositis during the COVID-19 Pandemic
, , Featured, Inclusion Body Myositis (IBM), News
Information from Orphazyme A/S about the Clinical Development of Arimoclomol in sIBM during the COVID-19 Pandemic. Read a statement...
MSU’s evolving plans for supporting the myositis community during the COVID-19 pandemic
, , Featured, Healthcare Tips, News
In light of the Coronavirus (COVID-19) worldwide pandemic Myositis Support and Understanding (MSU) will be shifting our focus to...
Introduction to the PRESIDIO Clinical Trial of KZR-616 for the Treatment of Polymyositis and Dermatomyositis
, , Featured, Video
Dr. Mary Katherine (MK) Farmer, MD, Rheumatologist and Senior Medical Director at Kezar Life Sciences, joined us live online...
Medical experts we consulted are urging caution and vigilance but not hysteria regarding the Coronavirus. Check out resources in...
Learn more about how to apply and qualify for Social Security Disability Benefits when living with the inflammatory myopathies,...
Helpful hints (not resolutions!) to start off the new year with a plan to work toward great mental health...
Arimoclomol receives US Fast Track designation in sporadic Inclusion Body Myositis
, , Featured, Inclusion Body Myositis (IBM)
Orphazyme's Arimoclomol receives US Fast Track designation in sporadic Inclusion Body Myositis, an incurable rare progressively debilitating muscle-wasting disease...
Get Support!
