View the summary of our first-ever FDA Listening Session on Adult Dermatomyositis. This was an opportunity to facilitate the...
Featured news, clinical trials, MSU updates and more.
Izandra Rudolph-Heard, our new Community Outreach Advisor for Research who is currently pursuing her Masters of Education in Mental...
Immune Globulin Therapy: All your questions answered
Myositis Support, , Featured, Myositis Treatments, NewsThe team from CSI Pharmacy and two patient experts joined to answer your questions about Ig therapy, IVIG and...
Pain profile and opioid medication use in patients with idiopathic inflammatory myopathies
Myositis Support, , Featured, News, ResearchWe are excited to announce our first publication, “Pain profile and opioid medication use in patients with idiopathic inflammatory...
Watch the recording with Alexion Pharmaceuticals to learn about the Flex Study to evaluate the safety and efficacy of...
Myositis patients and caregivers are invited to participate in a survey to help us understand how myositis impacts certain...
MSU is excited to welcome Abhiram R. Bhashyam, MD, Ph.D., Hand and Upper Extremity Orthopaedic Surgeon at Massachusetts General...
Intravenous Immune Globulin (IVIg) – A newly approved therapeutic option for the treatment of adult dermatomyositis
Myositis Support, , Featured, Myositis Treatments, ResearchWatch to learn about Octapharma’s IVIg therapy and the results of the landmark Progress in Dermatomyositis (ProDERM) study. The...
Myositis Support and Understanding announces reaching a milestone of giving $250k in myositis patient financial assistance.
Watch Poor Long-term Clinical Outcomes and Health-Related Quality of Life in Dermatomyositis and Polymyositis
Myositis Support, , Featured, ResearchDermatomyositis (DM) and polymyositis (PM) are rare autoimmune inflammatory myopathies characterized by muscle weakness and multiple extra-muscular manifestations that...
Pain Presentation at Annual Carrell-Krusen Neuromuscular Symposium
Myositis Support, , Featured, ResearchExcited to announce that our study “Pain profile and opioid medication use in myositis “ will be presented at...
MSU to host the first FDA Listening Session for Adult Dermatomyositis!
Myositis Support, , Featured, News, ResearchMSU is hosting the first FDA Listening Session on Adult Dermatomyositis on April 26, 2022. We hope the FDA will come...
Plasma Services Group (PSG) provides an update on what your samples are being used for and how important it...
AllStripes & MSU: You can accelerate drug development in Dermatomyositis!
Myositis Support, , Featured, ResearchAllStripes was honored to host this webinar with the Myositis Support and Understanding Association to discuss our current and...
Cannabis and Autoimmune Disease. Nurse and Cannabis Health Coach, Christine Lee, BSN, PHN, RN joined MSU to share about...
Understanding the Dermatomyositis Journey & Experience
Myositis Support, , Dermatomyositis, Featured, Take ActionSeeking ten (10) people living with Dermatomyositis who would be willing to share their personal experience in a market...
A heartwarming thanks to all 405 members who participated in our survey. This survey was created to help us...
Myositis Support & Understanding and AllStripes Partner for New Dermatomyositis Research
Myositis Support, , Dermatomyositis, Featured, ResearchMyositis Support & Understanding and AllStripes are partnering to create a database that will enable new Dermatomyositis research projects!...
Episode 2: Power of short duration exercise with Blood flow restriction (BFR)
Myositis Support, , Featured, Managing Your Care SeriesEpisode 2: Managing Your Care series, Brett Burton, PT, DPT, SCS, ATC, CSCS, Founder of Somavive and Proactive Performance...
See how the IndeeLift can change your life. Don’t let the cost deter you. If insurance will not cover,...