Myositis patients and caregivers are invited to participate in a survey to help us understand how myositis impacts certain...
Featured news, clinical trials, MSU updates and more.
MSU is excited to welcome Abhiram R. Bhashyam, MD, Ph.D., Hand and Upper Extremity Orthopaedic Surgeon at Massachusetts General...
Intravenous Immune Globulin (IVIg) – A newly approved therapeutic option for the treatment of adult dermatomyositis
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Watch to learn about Octapharma’s IVIg therapy and the results of the landmark Progress in Dermatomyositis (ProDERM) study. The...
Myositis Support and Understanding announces reaching a milestone of giving $250k in myositis patient financial assistance.
Watch Poor Long-term Clinical Outcomes and Health-Related Quality of Life in Dermatomyositis and Polymyositis
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Dermatomyositis (DM) and polymyositis (PM) are rare autoimmune inflammatory myopathies characterized by muscle weakness and multiple extra-muscular manifestations that...
Pain Presentation at Annual Carrell-Krusen Neuromuscular Symposium
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Excited to announce that our study “Pain profile and opioid medication use in myositis “ will be presented at...
MSU to host the first FDA Listening Session for Adult Dermatomyositis!
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MSU is hosting the first FDA Listening Session on Adult Dermatomyositis on April 26, 2022. We hope the FDA will come...
Plasma Services Group (PSG) provides an update on what your samples are being used for and how important it...
AllStripes & MSU: You can accelerate drug development in Dermatomyositis!
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AllStripes was honored to host this webinar with the Myositis Support and Understanding Association to discuss our current and...
Cannabis and Autoimmune Disease. Nurse and Cannabis Health Coach, Christine Lee, BSN, PHN, RN joined MSU to share about...
Understanding the Dermatomyositis Journey & Experience
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Seeking ten (10) people living with Dermatomyositis who would be willing to share their personal experience in a market...
A heartwarming thanks to all 405 members who participated in our survey. This survey was created to help us...
Myositis Support & Understanding and AllStripes Partner for New Dermatomyositis Research
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Myositis Support & Understanding and AllStripes are partnering to create a database that will enable new Dermatomyositis research projects!...
Episode 2: Power of short duration exercise with Blood flow restriction (BFR)
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Episode 2: Managing Your Care series, Brett Burton, PT, DPT, SCS, ATC, CSCS, Founder of Somavive and Proactive Performance...
See how the IndeeLift can change your life. Don’t let the cost deter you. If insurance will not cover,...
‘Oh The Places You’ll Go’: Traveling and Exploring with Confidence
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‘Oh The Places You’ll Go’: Traveling and Exploring with Confidence with Myositis, together with Megan and Lauren, Occupational Therapist’s...
Cheilonda Johnson, MD, MHS, joined the MSU family for a discussion about taking charge of your interstitial lung disease...
IndeeLift, in partnership with Myositis Support and Understanding (MSU) is announcing a new program that combines the opportunity to...
Corbus Pharmaceuticals Announces Topline Results from DETERMINE Phase 3 Study of Lenabasum for Treatment of Dermatomyositis
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Corbus releases topline results for the phase 3 study of lenabasum in dermatomyositis. While it didn't meet the primary...