Introducing High Fives from the Heart: #MyositisLIFE in a Pandemic World, our May 2020 Myositis Awareness Month. In May,...
Featured news, clinical trials, MSU updates and more.
Make your own fabric masks with this helpful information and some how-to videos for sew and no-sew fabric masks...
Learn more about using Zoom for MSU video support, activity and education sessions. Keeping software updated is important, as...
Dr. Lisa Christopher-Stine and Dr. Christopher Mecoli with Johns Hopkins Myositis Center joined MSU for a live Q&A webinar...
Clinical Trial of Arimoclomol in Inclusion Body Myositis during the COVID-19 Pandemic
, , Featured, Inclusion Body Myositis (IBM), News
Information from Orphazyme A/S about the Clinical Development of Arimoclomol in sIBM during the COVID-19 Pandemic. Read a statement...
MSU’s evolving plans for supporting the myositis community during the COVID-19 pandemic
, , Featured, Healthcare Tips, News
In light of the Coronavirus (COVID-19) worldwide pandemic Myositis Support and Understanding (MSU) will be shifting our focus to...
Introduction to the PRESIDIO Clinical Trial of KZR-616 for the Treatment of Polymyositis and Dermatomyositis
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Dr. Mary Katherine (MK) Farmer, MD, Rheumatologist and Senior Medical Director at Kezar Life Sciences, joined us live online...
Medical experts we consulted are urging caution and vigilance but not hysteria regarding the Coronavirus. Check out resources in...
Learn more about how to apply and qualify for Social Security Disability Benefits when living with the inflammatory myopathies,...
Helpful hints (not resolutions!) to start off the new year with a plan to work toward great mental health...
Arimoclomol receives US Fast Track designation in sporadic Inclusion Body Myositis
, , Featured, Inclusion Body Myositis (IBM)
Orphazyme's Arimoclomol receives US Fast Track designation in sporadic Inclusion Body Myositis, an incurable rare progressively debilitating muscle-wasting disease...
Summary of Dysphagia in patients with sporadic inclusion body myositis: Management challenges
, , Featured, Inclusion Body Myositis (IBM)
A summary of the review, including Coping Strategies provided by MSU International Science Advisor and IBM patient, Bill Tillier....
In celebration of National Family Caregivers Month, TMA and MSU collaborated for a conversation about the challenges of caring...
Introduction to Ra Pharma & the Potential of Zilucoplan for the Treatment of IMNM Webinar
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Ben Matys, Sr. Clinical Trial Manager, and Ramin Farzaneh-Far, Chief Medical Officer of Ra Pharma, joined MSU) on November...
The Food and Drug Administration (FDA) regulates stem cell products in the U.S. and recently issued a warning about...
A Phase 2 Study of Zilucoplan in Patients with Immune-Mediated Necrotizing Myopathy
, , Featured, Necrotizing Autoimmune Myopathy, News
We are excited to announce our partnership with Ra Pharma for RA101495-02.202: A Phase 2 Study of Zilucoplan in...
Experience of pain and fatigue in adult idiopathic inflammatory myopathies (IIM)
, , Featured, News, Video
Watch the video, "Experience of pain and fatigue in adult idiopathic inflammatory myopathies (IIM)" with Helene Alexanderson, Ph.D. with...
In this video, Patrick Schmidt of FFF Enterprises and Michelle Vogel of CSI Pharmacy join MSU to explain the...
Myositis Support and Understanding (MSU) partners with the University of Pittsburgh for a new NIH-sponsored study entitled, “Myositis Patient...
Michelle Vogel of CSI Pharmacy, a sponsor of MSU and MyositisLIFE.org, provides information about the national Ig shortage. These...
