Featured news, clinical trials, MSU updates and more.
, , Featured, Inclusion Body Myositis (IBM), News, Press
Mary Jane's passion for welcoming and educating was well-known throughout the myositis community. That’s why we can think of...
, , Dermatomyositis, Featured, News, Video
Dr. Victoria Werth joined us live online for a video education session titled, "Skin findings seen with myositis autoantibodies...
Plasma Services Group (PSG) joined us for a live video discussion about donating plasma for medical research. You could...
CSI Pharmacy joined us for a live video education session about IG therapy, both IVIG and SCIG. Health insurance...
A session that covered safety and effects of exercise in recent onset and established adult and juvenile IIM. Dr....
In observance of Myositis Awareness Month during the month of May, MSU has launched a new patient and caregiver...
The success of the Registry effort depends on the cooperative efforts of IBM patients around the world. The IBM...
, , Featured, Inclusion Body Myositis (IBM)
The ongoing Arimoclomol Clinical Trial for sIBM continues to generate a lot of questions from our community. As part...
, , Featured, Myositis
This paper assesses the performance of EULAR/ACR classification criteria in a cohort of IIM cases and examines how subtypes...
Learn about how clinical trials work in this educational and interactive video session led by Lindsey Wahlstrom-Edwards, Head of...
Alyssa Smith wrote and sings a new song, "Save Me" and it will premiere on Feb. 28th, Rare Disease...
, , Featured, Myositis, News
Interstitial lung disease (ILD) is a well-recognized complication in the spectrum of diseases known as the idiopathic inflammatory myopathies...
Introducing the NEW Myositis Support Community! The Myositis Support Community is similar to Facebook, however, it provides a more...
We are excited to announce a new collaboration with RDMD, a company that aims to jumpstart research for patients...
Join MSU in celebrating Rare Disease Day, Feb. 28th, and Rare Disease Week on Capitol Hill. We are also...
DETERMINE - a Phase 3 trial designed to evaluate the efficacy and safety of lenabasum for the treatment of adults...
, , Featured, Myositis
Information on the differential diagnosis of adults with muscle weakness. Differential diagnosis is the process of distinguishing a specific...
MSU has come a long way since the beginning in 2010 with our first Facebook support group and subsequent...
, , Dermatomyositis, Featured, News
New locations announced July 9, 2019. DETERMINE is a double-blind, placebo-controlled 1-year study designed to test the efficacy and...
Earn donations to Myositis Support and Understanding Association at no added cost to you by using goodshop.
© 2026 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.
