Corbus releases topline results for the phase 3 study of lenabasum in dermatomyositis. While it didn't meet the primary...
Tag Archive for: myositis research
Episode 1: Communicating with your doctor as a myositis patient
Myositis Support, , Featured, Managing Your Care Series, VideoWatch the recording of Episode 1 of our new webinar series, Managing Your Care Starts with You, together with...
AllStripes provides an update on the inclusion body myositis (IBM) research program and the video includes a step-by-step walkthrough...
After Diagnosis: The Burden of Care and the Evolving Doctor/Patient Relationship
Myositis Support, , Featured, VideoDr. Salman Bhai joins MSU to share best practices related to myositis care and empowers you to seek the...
Myositis Patients and Families Come First: Introducing Dr. Salman Bhai
Myositis Support, , Featured, NewsMeet Dr. Bhai who is working together with MSU, collaborating on myositis patient-centered research, patient education, grants, and improving...
Manuel Lubinus, MBA, Ph.D. has been appointed to our newly created Scientific Advisory Board as Patient-Centric Research Advisor and...
Help researchers and clinicians better understand how patients with myositis and other autoimmune conditions feel about COVID-19/the novel coronavirus.
Introduction to the PRESIDIO Clinical Trial of KZR-616 for the Treatment of Polymyositis and Dermatomyositis
Myositis Support, , Featured, VideoDr. Mary Katherine (MK) Farmer, MD, Rheumatologist and Senior Medical Director at Kezar Life Sciences, joined us live online...
Arimoclomol receives US Fast Track designation in sporadic Inclusion Body Myositis
Myositis Support, , Featured, Inclusion Body Myositis (IBM)Orphazyme's Arimoclomol receives US Fast Track designation in sporadic Inclusion Body Myositis, an incurable rare progressively debilitating muscle-wasting disease...
Introduction to Ra Pharma & the Potential of Zilucoplan for the Treatment of IMNM Webinar
Myositis Support, , Featured, VideoBen Matys, Sr. Clinical Trial Manager, and Ramin Farzaneh-Far, Chief Medical Officer of Ra Pharma, joined MSU) on November...
Myositis Support and Understanding (MSU) partners with the University of Pittsburgh for a new NIH-sponsored study entitled, “Myositis Patient...
Join the Yale Inclusion Body Myositis Registry
Myositis Support, , Featured, Inclusion Body Myositis (IBM)The success of the Registry effort depends on the cooperative efforts of IBM patients around the world. The IBM...
Watch the AllStripes, formerly RDMD, video session we did in 2020 to learn more about the Inclusion Body Myositis...
An Update on the Clinical Studies Using Arimoclomol as a Potential Treatment for Sporadic Inclusion Body Myositis Video
Myositis Support, , Featured, Inclusion Body Myositis (IBM)The ongoing Arimoclomol Clinical Trial for sIBM continues to generate a lot of questions from our community. As part...
The Performance of the EULAR/ACR IIM classification criteria in an expert-defined 10 year incident cohort
Myositis Support, , Featured, MyositisThis paper assesses the performance of EULAR/ACR classification criteria in a cohort of IIM cases and examines how subtypes...
An Update on the Clinical Studies Using Arimoclomol as a Potential Treatment for sIBM
Myositis Support, , Inclusion Body Myositis (IBM), VideoWatch "An Update on the Clinical Studies Using Arimoclomol as a Potential Treatment for sIBM" with Dr. Mazen Dimachkie,...
Learn about how clinical trials work in this educational and interactive video session led by Lindsey Wahlstrom-Edwards, Head of...
Identification of Predictors for Interstitial Lung Disease in Myositis Patients: A Systematic Review
Myositis Support, , Featured, Myositis, NewsInterstitial lung disease (ILD) is a well-recognized complication in the spectrum of diseases known as the idiopathic inflammatory myopathies...
RDMD and MSU Collaborating for IBM Research
Myositis Support, , Featured, Inclusion Body Myositis (IBM), NewsWe are excited to announce a new collaboration with RDMD, a company that aims to jumpstart research for patients...