The primary focus of Myositis Support and Understanding is muscle diseases which are referred to as “Idiopathic Inflammatory Myopathies” or “Acquired Myopathies,” meaning muscle diseases which are typically not inherited and are caused by the immune system attacking muscles, connective tissue, blood vessels, and/or the skin.
, , Myositis, Press
Portable Genomics and Myositis Support and Understanding Association (MSU) have partnered to enable myositis patients to better collect, manage,...
Corbus Pharmaceuticals will host Jerry Williams, the Founder and President of MSU, Heather Spadaccini, Jerry’s friend and part-time caregiver,...
Explaining myositis (Idiopathic Inflammatory Myopathy) and how it affects our lives is difficult. There isn’t a simple, clear-cut answer...
Living with, and trying to overcome, autoimmune diseases affect all the people we love. Those of us who have...
Dr. Victoria Werth, MD, presents, "Overview and new developments in Dermatomyositis." This was a live Myositis Support and Understanding...
, , Inclusion Body Myositis (IBM), News
On December 14, 2017, Orphazyme A/S, University of Kansas Medical Center, and UCL announced that Orphazyme formally assumes the...
Learn more about the different types of Myositis Live Online Video Support, Education, and Activity Sessions we offer, how...
, , Inclusion Body Myositis (IBM), News
Orphazyme A/S, a Danish biotech company with a late-stage orphan drug pipeline, today announced that the U.S. Food and...
Chronic Illness, Myositis, and Depression: The following are the comments I gave to a support group about my book,...
Learn more about Rose's experience on Capitol Hill during Rare Disease Week 2017. Find helpful links to Advocacy organizations...
Although everyday life seems like a mad dash to the finish line honestly it’s all about staying the course...
Mums journey was a very difficult one. I remember her first fall the day I gave birth to...
It has been over 13 years since Jerry Williams, president of MSU, was diagnosed with Polymyositis, sometimes simply referred...
As we continue our rapid growth, we are looking for volunteers and Board Members who are interested in donating...
Learn more about Lynn Lizarraga and her online video laughter yoga program she provides to members of Myositis Support...
There are many challenges faced by patients living with a rare, chronic illness like Myositis. These can include: medication...
Simply stated, an “orphan disease,” sometimes called a “rare disease,” describes one of more of 7,000 diseases affecting relatively...
Myositis Support and Understanding recently spoke with Rich and Carla Stevenson, David Quay, and Barry Pace about life with...
, , Myositis, Myositis Life Hacks
One of the worst things someone with chronic illness can do is make a mistake in the balance between...
Earn donations to Myositis Support and Understanding Association at no added cost to you by using goodshop.
© 2025 Myositis Support and Understanding Association (MSU). All rights reserved. | View our Privacy Policy, Terms, and Non-Discrimination policy. MSU is a charitable organization with 501(c)(3) tax-exempt status. Federal ID #47-4570748.
