MSU Founder and President, Jerry Williams, shares his #MyositisLIFE. He shares his commitment to helping other Myositis patients...
Myositis News and Updates
I was diagnosed with Polymyositis in September of 2012. Before getting sick, I was always so busy working, running...
Sage Interviews Emily about Life with Myositis and why #MyositisAwareness is important
Myositis Support, , #MyositisLIFE, MyositisLIFE VideoSage Filmore, 10 years old, interviews her mom, Emily Filmore, about MSU and what it is like to live...
I am the their care giver you see me every where But what you don't see is just how I...
I have polymyositis , having been diagnosed 24 years ago. The diagnosis was confirmed after six months of testing. I...
I have been working on my cross stitch project for several months. Here is the first half.
I have Inclusion Body Myositis (IBM); a rare and degenerative muscle disease. It is an autoimmune disease with symptoms...
This is a glimpse of my simple but fulfilling life with Myositis.
In December 2003 I began complaining about a burning sensation in my lower legs, so bad that it would...
Emily Filmore, Vice President of MSU and author of "The Marvelous Transformation: Living Well with Autoimmune Disease" shares this...
Maureen, the Senior Group Administrator for MSU, and a patient living with Polymyositis, shares her #MyositisLIFE with MSU showing...
PR: Myositis Support and Understanding Association celebrates Myositis Awareness month with #MyositisLIFE-themed activities
Myositis Support, , News, PressLincoln, DE – May 1, 2016 – What is your #MyositisLIFE? May is Myositis Awareness Month. Myositis Support and Understanding Association...
Helping family members understand the merry-go-round of chronic illness from a spouse’s perspective
Emily Filmore, , CaregiverA recurring topic of conversation in health support groups is the difficulty spouses, partners, parents, siblings, children, or friends...
At MSU, our passion translates into action As promised, the brand new Myositis Support and Understanding Association website is...
In sickness and in health My love affair with Dermatomyositis started on the 14th February 2004 aged 22. Maybe...
You are rare! Yes, you, living with Polymyositis, Dermatomyositis, Inclusion Body Myositis, and Juvenile Myositis. Our caregivers, you, too,...
PR: Myositis Support and Understanding Association announces its new Video Chat Support Program
Myositis Support, , News, PressMyositis Support and Understanding Association announces its new Video Chat Support Program Lincoln, DE — February 26, 2016 —...
Simply stated, an “orphan disease,” sometimes called a “rare disease,” describes one of more of 7,000 diseases affecting relatively...
Myositis Support and Understanding Joins Rare Disease Day® and the Global Movement to Raise Important Awareness for Rare Diseases...
Step Therapy: Failing to Take Steps Toward the Successful Treatment of Patients
Jerry Williams, , Autoimmune Disease, MyositisFortunately, a lot of discussion is going around about Step Therapy, first brought to our attention by the American...