Megan McGowen and Lauren Burgess, Occupational Therapy, and Fin Mears, Physical Therapy, with the Johns Hopkins Myositis Center discuss...
Featured news, clinical trials, MSU updates and more.
AllStripes provides an update on the inclusion body myositis (IBM) research program and the video includes a step-by-step walkthrough...
After Diagnosis: The Burden of Care and the Evolving Doctor/Patient Relationship
![](https://understandingmyositis.org/wp-content/uploads/avatars/18/5c26225d19e4a-bpthumb.png)
Dr. Salman Bhai joins MSU to share best practices related to myositis care and empowers you to seek the...
Learn practical techniques on how to flip negativity and tame irrational thinking patterns, how to reframe our attitude about...
Myositis Patients and Families Come First: Introducing Dr. Salman Bhai
![](https://understandingmyositis.org/wp-content/uploads/avatars/18/5c26225d19e4a-bpthumb.png)
Meet Dr. Bhai who is working together with MSU, collaborating on myositis patient-centered research, patient education, grants, and improving...
The Tiger at the Door: The Relationship between Trauma and Chronic Pain
![](https://understandingmyositis.org/wp-content/uploads/avatars/18/5c26225d19e4a-bpthumb.png)
Learn what trauma is and isn’t, one theory of how it develops, and how it impacts the nervous system,...
Young adults living with rare diseases have many unmet needs and many life decisions that can be impacted by...
Manuel Lubinus, MBA, Ph.D. has been appointed to our newly created Scientific Advisory Board as Patient-Centric Research Advisor and...
Meet two people with myositis who are living their lives with purpose and positivity. Holly Jones and Rhonda Rogers...
Third Annual “A Day of Remembrance” a video event to honor and remember those we have lost with myositis....
Educational and engaging discussion w/ Dr. Andrew Mammen around immune-mediated necrotizing myopathy (IMNM) and the phase 2 clinical trial...
The Power of Forgiveness: How it can help care partners
![](https://understandingmyositis.org/wp-content/uploads/avatars/18/5c26225d19e4a-bpthumb.png)
Learn how not forgiving others negatively impacts us, not the person we don’t want to forgive. We’ll look at...
This introduction to pain management will cover what chronic pain is and isn’t, different types of pain and their...
Myositis Support and Understanding (MSU) announces the formation of its Diversity, Equity, and Inclusion Committee
![](https://understandingmyositis.org/wp-content/uploads/avatars/18/5c26225d19e4a-bpthumb.png)
MSU’s Diversity, Equity, and Inclusion Committee's goal is to amplify more wide-ranging voices, while increasing MSU’s ability to serve...
Watch to learn about safety, from fall prevention to the response for myositis patients and caregivers. Includes demonstrations and...
Trusted resources and updates about the coronavirus (COVID-19) pandemic and myositis, including newly updated information and resources to help...
Watch for information to help guide your local physical and occupational therapy teams such as what should be included...
MSU supports our myositis community members who are Black and are other People of Color (POC)
![](https://understandingmyositis.org/wp-content/uploads/avatars/18/5c26225d19e4a-bpthumb.png)
Until systemic oppression is addressed in policing, education, medicine, and in countless other places, we will never be able...
Learn about plasma donation and invite your family and friends to donate to help prevent a shortage of immunoglobulin...
Paul Kidwell Presents Five Stories at the Heart of Caregiving
![](https://understandingmyositis.org/wp-content/uploads/avatars/18/5c26225d19e4a-bpthumb.png)
Paul shares five important elements at the Heart of Caregiving from his own personal experience and story as a...