IndeeLift, in partnership with Myositis Support and Understanding (MSU) is announcing a new program that combines the opportunity to...
Featured news, clinical trials, MSU updates and more.
Corbus Pharmaceuticals Announces Topline Results from DETERMINE Phase 3 Study of Lenabasum for Treatment of Dermatomyositis
, , Dermatomyositis, Featured, Research
Corbus releases topline results for the phase 3 study of lenabasum in dermatomyositis. While it didn't meet the primary...
Myositis Do-It-Yourself Accessibility Adaptations with Larry M.
, , Featured, Myositis Life Hacks, Video
Larry M. is living with inclusion body myositis (IBM) and he joined us to share adaptations he has made...
David Overby, a Physical Therapist with his own practice, joins us to talk about Hands On Physical Therapy for...
Watch the recording. Mamatha Pasnoor, MD, joined us to discuss inflammation of muscles with COVID infection, vaccination with immunosuppressive...
Episode 1: Communicating with your doctor as a myositis patient
, , Featured, Managing Your Care Series, Video
Watch the recording of Episode 1 of our new webinar series, Managing Your Care Starts with You, together with...
Watch "Understanding Dysphagia" with Suzanne Belmonte, who is a myositis patient, and speech-language pathologist. Learn more about dysphagia from...
To better fulfill its mission of improving the lives of and empowering those fighting myositis Myositis Support and Understanding...
Doctor Salman Bhai MD joins the board of Myositis Support and Understanding as Medical Advisor
, , Featured, News
We are excited to announce that doctor Salman Bhai MD will be joining the MSU board as Medical Advisor....
MSU Myositis Awareness Month Apparel, three campaigns to choose from, or purchase from all. #MyoForest, #MyoRainbow, and #MyoHeartsandMinds
Orphazyme announces topline results of Phase 2/3 trial of arimoclomol for Inclusion Body Myositis (IBM)
, , Featured, Inclusion Body Myositis (IBM), News
Learn more about the announcement from Orphazyme, communicating the topline results from the Phase 2/3 trial of arimoclomol for...
A Closer Look: Clinical Trials and the PRESIDIO Study
, , Dermatomyositis, Featured, Necrotizing Autoimmune Myopathy, Polymyositis, Video
Clinical trials are a key research tool for advancing medical knowledge and patient care. Join Kezar Life Sciences as...
For patients, caregivers, family and friends, watch Part 5 of our popular Exercise In Place series with the OT/PT...
Inclusion means recognizing how important and special a role each person plays in this beautiful, diverse world we live...
The COVID vaccine is here, but what does that mean for us with myositis? MSU provides answers to some...
Megan McGowen and Lauren Burgess, Occupational Therapy, and Fin Mears, Physical Therapy, with the Johns Hopkins Myositis Center discuss...
AllStripes provides an update on the inclusion body myositis (IBM) research program and the video includes a step-by-step walkthrough...
After Diagnosis: The Burden of Care and the Evolving Doctor/Patient Relationship
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Dr. Salman Bhai joins MSU to share best practices related to myositis care and empowers you to seek the...
Flip Negativity
, , Featured, Video
Learn practical techniques on how to flip negativity and tame irrational thinking patterns, how to reframe our attitude about...
