Register & Submit Questions: Myositis, Immunosuppressants, and COVID Vaccine Response. A panel of John Hopkins physician researchers will be...
Myositis Do-It-Yourself Accessibility Adaptations with Larry M.
, , Featured, Myositis Life Hacks, Video
Larry M. is living with inclusion body myositis (IBM) and he joined us to share adaptations he has made...
David Overby, a Physical Therapist with his own practice, joins us to talk about Hands On Physical Therapy for...
Watch the recording. Mamatha Pasnoor, MD, joined us to discuss inflammation of muscles with COVID infection, vaccination with immunosuppressive...
Episode 1: Communicating with your doctor as a myositis patient
, , Featured, Managing Your Care Series, Video
Watch the recording of Episode 1 of our new webinar series, Managing Your Care Starts with You, together with...
Watch "Understanding Dysphagia" with Suzanne Belmonte, who is a myositis patient, and speech-language pathologist. Learn more about dysphagia from...
A Closer Look: Clinical Trials and the PRESIDIO Study
, , Dermatomyositis, Featured, Necrotizing Autoimmune Myopathy, Polymyositis, Video
Clinical trials are a key research tool for advancing medical knowledge and patient care. Join Kezar Life Sciences as...
For patients, caregivers, family and friends, watch Part 5 of our popular Exercise In Place series with the OT/PT...
Megan McGowen and Lauren Burgess, Occupational Therapy, and Fin Mears, Physical Therapy, with the Johns Hopkins Myositis Center discuss...
AllStripes provides an update on the inclusion body myositis (IBM) research program and the video includes a step-by-step walkthrough...
After Diagnosis: The Burden of Care and the Evolving Doctor/Patient Relationship
, , Featured, Video
Dr. Salman Bhai joins MSU to share best practices related to myositis care and empowers you to seek the...
Flip Negativity
, , Featured, Video
Learn practical techniques on how to flip negativity and tame irrational thinking patterns, how to reframe our attitude about...
Learn what trauma is and isn’t, one theory of how it develops, and how it impacts the nervous system,...
Young adults living with rare diseases have many unmet needs and many life decisions that can be impacted by...
Meet two people with myositis who are living their lives with purpose and positivity. Holly Jones and Rhonda Rogers...
Educational and engaging discussion w/ Dr. Andrew Mammen around immune-mediated necrotizing myopathy (IMNM) and the phase 2 clinical trial...
Learn how not forgiving others negatively impacts us, not the person we don’t want to forgive. We’ll look at...
This introduction to pain management will cover what chronic pain is and isn’t, different types of pain and their...
Watch to learn about safety, from fall prevention to the response for myositis patients and caregivers. Includes demonstrations and...
Watch for information to help guide your local physical and occupational therapy teams such as what should be included...
