Articles related to Myositis, Myositis Support and Understanding, and other relevant topics to inflammatory myopathies and autoimmune disease research, updates, knowledge, and education.
MSU is an organization which is operated by volunteers who understand Myositis on a very personal level. As patients with Myositis, we, too, experience the frustration of living with this disease which is rare and treatments which are harsh.
We understand that our medical team is extremely important to us, but that they have no way to truly understand what it is really like to live with our rare and complicated disease. So we lean on each other and learn from each other through our support groups, our website, and our nonprofit organization.
We continue to harness enthusiasm and determination focusing on educating each other, our friends and families, and the medical profession. Utilizing the energy we create working with each other to be a valuable force to the understanding and advocacy of these diseases and to provide assistance and support to people with Myositis.
The future of Myositis is bright, as is our future as an organization. We will post updates as we work towards our goals. We appreciate your support!
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Clinical trials and studies require patient groups in clearly defined categories, but the multiple diagnostic and classification criteria used...
Updated April 23, 2019 - Study is fully enrolled. One of our goals is to provide inclusion body...
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In this study, the researchers set out to determine if there was a distinction between the type of autoantibodies...
Amazon's donate feature is a part of the various tools and programs MSU uses to make donating fast and easy....
Today, Corbus Pharmaceuticals announced that the European Commission has approved orphan designation for lenabasum in the treatment of dermatomyositis...
Joining the association are Jim Doiron from Leesburg, VA; Lynn Wilson, from Taylor Lake Village, TX; Caitlin Ray from...
Corbus Pharmaceuticals announced today that they will proceed with a Phase 3 clinical trial to evaluate the efficacy and...
Myositis patients have special needs when preparing for natural disasters. Learn more and be prepared with a plan
, , Inclusion Body Myositis (IBM), News, Video
Dr. Conrad "Chris" Weihl joins MSU live for a session titled "New Insights on sporadic Inclusion body myositis (sIBM)...
Corbus Pharmaceuticals will host Jerry Williams, the Founder and President of MSU, Heather Spadaccini, Jerry’s friend and part-time caregiver,...
MSU, in participation with Corbus Pharmaceuticals, Idera Pharmaceuticals, and Diplomat Specialty Infusion Group, as a part of Myositis Awareness...
PR: Myositis Support and Understanding Association, an all-volunteer, patient-centered 501(c)(3) nonprofit organization, commemorates National Myositis Awareness month with the...
Founder and President of MSU, Jerry Williams, shares details about MSU's plans for Myositis Awareness month, May 2018. Myositis...
MSU, a patient-centered 501(c)(3) nonprofit organization, is proud to announce a partnership with Antidote Technologies, a digital health company...
Myositis Support and Understanding Association (MSU) has joined forces with 30 million Americans and health care advocates around the...
It has been a busy and productive year for MSU. We are sorry so many are still suffering from...
, , Inclusion Body Myositis (IBM), News
On December 14, 2017, Orphazyme A/S, University of Kansas Medical Center, and UCL announced that Orphazyme formally assumes the...
Learn more about the different types of Myositis Live Online Video Support, Education, and Activity Sessions we offer, how...
PRESS RELEASE: Myositis Support and Understanding (MSU) is once again a participant in #GivingTuesday, a global day of giving....
, , Inclusion Body Myositis (IBM), News
Orphazyme A/S, a Danish biotech company with a late-stage orphan drug pipeline, today announced that the U.S. Food and...
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